The recommendations are presented in four categories: 1) Determining an Institution’s Status and Policy Needs; 2) Implementing Policy and Fostering Process Transparency; 3) Communicating the Nature of Restrictions; and 4) Describing Records to Best Enable Discovery and Access. Those who care for and provide access to records containing health information about individuals are invited to test the recommendations and provide feedback on their utility; those who use such records in their research are equally invited to comment on their scope.
Researchers who have used or are seeking access to primary sources containing health information about individuals are encouraged to share their experiences and difficulties accessing health services records. Visit the MHL’s researcher access survey site [https://www.surveymonkey.com/
For more information, please contact the Medical Heritage Library at MedicalHeritage@gmail.com
This work was made possible through the generous funding of the Mellon Foundation through the Council for Library and Information Resources’ Cataloging Hidden Special Collections and Archives [http://www.clir.org/
-Hanna Clutterbuck-Cook (on behalf of Emily Gustainis and Phoebe Evans Letocha)
Processing Assistant, Center for the History of Medicine and
Project Coordinator, Medical Heritage Library (http://www.medicalheritage.